A waiting game...

I hate to say it and I hate to be really negative... but the NHS sucks right about now!!

6 weeks ago I was meant to see my gynae, and find out the issue with the last surgery - and the next options. So my bowel resection and all the other info I needed. I was also meant to be starting a new form of treatment - which my gynae wanted to wait for 3 months post op before I started it. Allow the lovely zolly to get out of my system completely.
So.. the day comes for my appointment and I am ready and eager... Half an hour before the appointmet - I received a call saying that they had lost my notes and therefore my appointment was cancelled...

That was 6 weeks ago - and still my notes have not been found. They have lost over 10 years of notes. All 6 surgeries, all the doctors, all the medications I have been on and more importantly for me the results and info about June 2012 surgery. I was so upset that day, I could not keep it together. They do not seem to understand the emotional aspect of all of this at all.. It hit me hard..

So, I am still waiting to begin my treatment and still have no idea about my next surgeries or what went wrong last time. I am managing my days of 15 pills... A combination of Gabapentin, Naproxen, Tramadol, Amitriptyline and BuTrans patches. This is far too much for one person it really is an insane amount of medication. My body is crying out for treatment, and for something to be done...

I know I am in the worse stages of Endo, with my digestive system being attacked by it, but I need to see my gynae. I need to understand what it going on and what the plan is... Until my notes are found - I will be at a complete loss!

So I go on, I move forward and I do what I can. I have written to the Patient Liason Service and I contact the hospital every week. They still refuse to see me without finding my notes... I just really hope they are found. I dont know what I will do if they are not found... Lord only knows.

FINGERS CROSSED!!!

XX