I have begun my blog to raise awareness to the chronic disease Endometriosis. I would like my blog to be a source of information on all aspects of this disease - whether that be surgery, treatment or the day-to-day aspects of living with this condition. I have created a Video Blog to work along side this to discuss a whole variety of issues.

Wednesday 15 May 2013

A change of tactics...

In order for me to be able to handle my endo, cope with my developed disability and inability to work; I have embarked on a series of emotional support therapies to allow me to become emotionally stronger. Imperative I believe to continuing to fight endo and deal with it in a day to day basis.

It has been 15 years now that I have been fighting endo, and 10 years that I have had a diagnosis. A term which may sound long to some, or indeed short to others. Throughout this time my emotions have gone through every possible avenue. They have been up, down, nocholant or at the point of despair. I have always felt it easier to face endo head on, when my mental health and emotional wellbeing is stronger. When I feel stronger in myself and more able to cope... I cope and I fight and I persevere...

The support that I am now receiving I feel I very much needed and will get me back to the point of wanting to fight endo, and feeling like I can. Also without it mentally exhausting me. So far I have been looking at positive self and developing a better opinion of myself. Also looking at mind and body and how I can use relaxation techniques, breathing techniques to calm down especially when in pain. I have also started looking at Chi Gung, which is a form of Tai Chi that has been adapted for my physical disposition. I am able to do this seated and a range of movements that will help with increasing the movement I have lost and focusing by body as a whole.

I think that by the end of this therapy or actually as it continues I will find a renewed focus and a better ability to manage endo and the struggles that it brings. I shall remain hopeful as ever.

X

Sunday 12 May 2013

So much going on!!

What a busy busy little bee this endo fighter has been of late!! I seem to be living at the hospital at the moment... Alas, I had two admissions over the last two months, not the best of situations... And I have had many an appointment since then. But things are moving in a steady direction, it's always good to see things moving.

My heart problem has been fully investigated... It is called a QT defect, which is around the electrical pulses of the heart... Making it double beat. So it beats too fast overall. Some of my meds were making this defect worse. So I have had a total overhaul of my meds. The only thing that has remained is my Naproxen and my Provera. Morphine is now has a twice daily appearance in my army of meds. Took some getting used too. But it is nicely settled in my system now. :-)

Over the next two weeks, I see my bowel surgeon, my gynae and my cardiologist! There really is no rest for the wicked. I think I should have a permenant car park space at the hospital!! Lol. 

Lots and lots to look forward too... Gosh it is exhausting thinking about it!! X