My back really really hurts

Well what a few days it has been this week. My sciatica is nestling in big time and certainly making its presence felt... It's so deep in my back it really it.
Today I have struggled with walking, standing and sitting and so have spent most of the day in bed. It's really difficult to describe the pain that occurs its very much like a lightening bolt shoots through my back! And my butt cheek. Today it has not been in the hip as much... Son that's something.
I had a lovely bath though this evening it was nice and relaxing. Thank you Elemis!! Lol. Lavender elixir was truly great on my back. I just need to have that feeling all day every day!! :-)

Anyway I write this at 2.40 am as I seem to be unable to get to sleep tonight. With the amount of meds I am on I shouldn't have a problem... Not at all... But it's not happening tonight!! :-( here is hoping it happens soon.

Sweet dreams one and all. X x x

New Project!

I have had a thought process about how else I can raise awareness about Endometriosis...And I do believe that I have actually found a way!!It is in the very very early stages and I cam still trying to get all ideas down on paper and into a format that actually makes some sense... But I believe that this idea could really really work!

I have been speaking to others and they agree that if done correctly this could turn out to be a great thing!!

So here goes... I know that I am being very evasive at the moment and not giving much away in the detail at all!! But I will announce very shortly fear not!!

Love to you all!!

Andrea
xx xx

My little update... While I am high!!

Ouch my back!!

Afternoon on and all I hope that you are all well...

Following yesterdays trip to the doctors it turned out I have very bad sciatica. This is what has been causing all of my pain in my hip and lower back. Along with all the numbing feeling i have in my toes and in my butt cheek...

I have been given Diazepam and Naproxen to take with all my other meds, so I have a right little cocktail going on now!! I spent most of yesterday very very lucid and not really aware of much. As I am already on 100s Tramadol and Amitriptyline. And oxycodone when things get very bad.

I am glad that I now have a diagnosis and I am at least aware now what has been causing all of this hip and leg pain.. I had just presumed that this was all of my endo pain. It may have happened during surgery. I am trying to think how long I have suffered with this... But th months are so blurred of last year - with so many hospital admissions! But at least it is being treated now. That is a good thing for sure!!

Fingers crossed over the next few days things will get easier and I can start to move around. I did post a video of me explaining what had happened at th docs... I was so very high at the time!! It has made quite a few people laugh. Which is great!! Have a look see!

Love to you all.

A
xxx

Video 2: What is Endometriosis

Sickie Sunday...

I really am looking forward to going to the Doctors tomorrow it is untrue. I need to speak to someone about this pain. It is not getting any better at all... only worse from all I can tell. I am hoping for a few answers about what I can do and hopefully some stronger pain medication.

What I am suffering with at the moment is pain within my hips and my right leg.. I seem to have some trapped nerves and some nerve damage... which is causing me to lose feeling in my right leg, swelling of my right leg and feelings of heaviness within my right leg. This pain is radiating all through my hip in to my lower back. And really is most uncomfortable.

At the moment I am not travelling very well at all and am suffering with motion sickness which really is not nice. I went to see my parents yesterday and spent not even an hour in the car; five mins into the journey and I had terrible nausea. Coming back home was just as bad and I was very sick when I did eventually get home. So I am not feeling too jolly today unfortunately.

I had a horrible nights sleep.. So I used the time to my advantage and recorded my new blog. My video is uploading as we speak! So that is definitely something to be happy about!

Love to you all xxxx

Bad back...

I am really struggling with my back today. I am in complete agony. I didn't sleep very well at all and so have just woken up. But I am finding it very hard to move and walk around. Even sitting is causing great pain.
I currently have nerve damage and trapped nerves in my back, my right thigh, and around my right hip. This causes pain to radiate down my leg and swell. I also lose the feelings in my toes quite a lot of the time.
I have been trying to manage with the pain relief I currently have... But it is not working very well at all... So I am going to see my GP. I have an appointment for Monday at 9am. I need something doing. I don know what can be done to be honest. But for the moment, stronger pain relief would be a great start.

As for getting through the weekend it will be a case of many hot water bottles, tens machines, pain killers and plenty of rest...

Xxxx

The day after...

Well, I posted my blog yesterday as you can see in the post below... and I have had such an amazing and positive response from it I really have. Iknow I am on the right path and I hhope thatover time I can gradually reach more and more people. Those that suffer and those that dont. I want to make people aware allowing them to become more compassionate and understanding about the disease.

In terms of me... well things are tough at the moment... pain meds seem to have stopped working. My HRT is making my menopause symptoms worse and I am experiencing awful back pain. Im back on the Targinact now so hopefully that will ebb the pain somewhat...  I must go back to the doctors again to go through all of these issues... I should have a permenant seat there!! lol

Take care one and all
xxx

My First Video Blog: Who am I?

Currently...

So it has been a busy couple of weeks really. Lots has been going on. So let me bring you all up to speed...
I have had my follow up appointment with my gynae following my surgery and have had all of my results. It turns out that my endo was very widespread and it was not possible to remove it all in one surgery. It would have caused far too much damage to attempt it all. So half of the endo has been removed and the rest will take place in a surgery I have been scheduled for on 13th June 2012. I am not happy that I have to have more surgery. This will mean I have had 3 surgeries in 18 months. That really is very close together. All in all my endo was so widespread. Both my ovaries were covered, and had to be fully lasered. My bladder is also covered, along with it all along the front of my pelvis. They removed the chocolate cyst they found also; it ended up being 10cms.
I don't know how to feel about it all if I am honest with you. It is upsetting of course that things have grown so much. What is surprising is that  have been on non stop therapy for about 3 years and still the endo had grown. What will they do after the surgery? How do they attempt to keep it at bay?? The only treatment that has had results is Zoladex and i cant be on the permanently. They now only do it for 6 months...
I am thinking whether to discuss things like a hysterectomy with my gynae. I have tried to have these conversations before - but it has been dismissed. But surely I have more of a case now if I am having to have so many surgeries so close together? I surely cannot keep having so many surgeries its not good for me. It causes untold problems when that happens over and over... I know that a hysterectomy is not a cure at all. But would it not give me some relief? I need t go through this with my consultant on 30th April when I see him again...
There are so many things to decide and plenty to think of....

xxx