I have begun my blog to raise awareness to the chronic disease Endometriosis. I would like my blog to be a source of information on all aspects of this disease - whether that be surgery, treatment or the day-to-day aspects of living with this condition. I have created a Video Blog to work along side this to discuss a whole variety of issues.

Monday 5 November 2012

Gym time is good for you.

This week I am going to try and get back to gym a little bit... I really really miss the gym so much! And I long for a nice swim or a run...

With the problems I am having around my heart, I have to be careful with the cardio things. With a resting pulse at 117 bpm, I am not allowed to over-exert myself until my ECG has Aiken place. But, mild exercise. So walking on the treadmill. Light cycling. Small amount of swimming is ok. I will naturally listen to my body and not push it too much.

Exercise makes me feel so much better about myself. Plus it is good for the pain... It is tough when the pain is so bad you don't want to move at all!! But it does help to keep moving when you can. I am no where near the standard I was once at. But keeping myself fit and healthy is all
I ask for at the moment... So David Lloyd near me have an amazing gym!! All the mod cons and a stunning health suite too. With sauna and steam. So I shall be investing in a membership there.

Can hardly wait!!!

Saturday 3 November 2012

Give into a little indulgence...

There are those days when I want to just say hang it all... I am going to be self indulgent... and this is one of those days!!

Every now and then, I want to blow off a little steam and simply indulge myself in the things that I should not eat or do... I want to drink a gorgeous bottle of red wine, I want to have rich food and ice cream and I want to dance the night away!! Sometimes, you have to listen to your body... when it is telling you to slow down and when it is telling you to indulge.

Now, I know very well indeed the sorts of things that set my body off, and cause flares, and 90% of the time I am such a good girl and I do everything I am supposed to. But tonight... I am going to eat something really tasty and naughty for dinner. I am going to drink a couple of glasses of red wine. I will leave out the dancing... well maybe around my lounge who knows!! lol.

There are times to be good and there are times to be bad. After all - what is life without a little fun! I now what to expect tomorrow and so will be sure to take all the necessary precautions... But for now... Let the fun begin!!

Xx

Friday 2 November 2012

A waiting game...

I hate to say it and I hate to be really negative... but the NHS sucks right about now!!

6 weeks ago I was meant to see my gynae, and find out the issue with the last surgery - and the next options. So my bowel resection and all the other info I needed. I was also meant to be starting a new form of treatment - which my gynae wanted to wait for 3 months post op before I started it. Allow the lovely zolly to get out of my system completely.
So.. the day comes for my appointment and I am ready and eager... Half an hour before the appointmet - I received a call saying that they had lost my notes and therefore my appointment was cancelled...

That was 6 weeks ago - and still my notes have not been found. They have lost over 10 years of notes. All 6 surgeries, all the doctors, all the medications I have been on and more importantly for me the results and info about June 2012 surgery. I was so upset that day, I could not keep it together. They do not seem to understand the emotional aspect of all of this at all.. It hit me hard..

So, I am still waiting to begin my treatment and still have no idea about my next surgeries or what went wrong last time. I am managing my days of 15 pills... A combination of Gabapentin, Naproxen, Tramadol, Amitriptyline and BuTrans patches. This is far too much for one person it really is an insane amount of medication. My body is crying out for treatment, and for something to be done...

I know I am in the worse stages of Endo, with my digestive system being attacked by it, but I need to see my gynae. I need to understand what it going on and what the plan is... Until my notes are found - I will be at a complete loss!

So I go on, I move forward and I do what I can. I have written to the Patient Liason Service and I contact the hospital every week. They still refuse to see me without finding my notes... I just really hope they are found. I dont know what I will do if they are not found... Lord only knows.

FINGERS CROSSED!!!

XX