I have begun my blog to raise awareness to the chronic disease Endometriosis. I would like my blog to be a source of information on all aspects of this disease - whether that be surgery, treatment or the day-to-day aspects of living with this condition. I have created a Video Blog to work along side this to discuss a whole variety of issues.

Wednesday 12 September 2012

Gabapentin...

Well ladies... It has been over a week now that I have been properly on my new dosage of my neuro pain medication Gabapentin... And all I can say at the moment is bleugh! They are making me feel quite wretched at the moment and not noticing any plus sides at all. I know it's early days and it will take prob about 6 weeks to 2 months for me to feel the benefits but that's such a long way away!!

I am feeling so tired all of the time. My memory is shot to pieces... I seen to spend half the time sitting there or wandering around trying to remember what I am meant to be doing!! Lol. Very frustrating.

The worst effect I have had so far has been the night terrors. Horrid, evil, violent and vivid dreams. The kind that give you the feeling that stays with you all day. I have done some research into this and it's not unheard of... Around 1% of those on Gabapentin have recorded night terrors. Although I am sure that number could be higher with unrecorded people. The worst thing is I am so drugged up that I have been unable to wake myself from the terrors and so they go on and on all through the night. I am hoping that these effects wear off soon as I really don't think I can cope with that every day. It's been bad enough already!!

It's now only 11 days to go until I see my gynae. I cannot wait to be fair. I am eager to hear about this next bout of surgery, when and where it is going to take place and how long I will be out of the loop for. Counting down the days!!!

3 comments:

  1. I was given this an amitriptalyne (SP?) and it was useless to me. I was having daily dreams about death, waking up groggy like and was going through the motions like a zombie for 3 months. I came off both of them. Now I have tinnitus is both of my ears so loud and I really hope its not a permanent side effect

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  2. Oh gosh! Tintinuy is horrid!! I found with the Amitriptyline the best thing is to take 2 hours before you want to go to bed. Taking it earlier for me got rid of all the hangover and groggyness. Took about 6 months to figure it all out though.
    The Gabapentin dreams are just horrid - I wish they warned me of that. Luckily now they have all gone. I have one very rarely now which is good. As it got to the point where I didnt wanna sleep!! xxx

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  3. Have you seen Mr.Mann who does excision surgery for endo? Facebook group Nancys Nook has excellent lists of excision specialists worldwide.fabulous information upto date from the specialists rhemselves. The files section is fantastic.

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