Doctors always say that you need to exercise when you have Endo... That it will really help you... Now this is something that of course depends on how you feel. If I am rolling around on the floor in agony or totally bed bound, the entire notion of exercise is insane!! Some doctors don't look at the state that you are in when they tell you this. When you are struggling to walk - there is no way that I am going to exercise!!
However, when I am mobile and the hug cocktail of pain medication works I go to the gym. I push my so much to do the best that I can and to work through the pain. I love the feeling I have after!! Totally buzzing on endorphins! The worlds best high ever.
The only issue is, that I know my pain levels will shoot through the roof later. I love to exercise, but Endo really doesn't like it at all. But I must persevere and push through as best as I can. I will make the most of being able to exercise when I can. As the next flare in invariably cripple me for a few days as it always does!! Fingers crossed it won't happen just yet.
Xx xx
Saturday, 5 January 2013
Wednesday, 2 January 2013
Weight issues:
Right... Well I went to see the doctor this week as I am concerned about the effects that all these meds have been having on my body. In relation to my weight. For the last 2 years I have been on many many hormone therapies. Pretty much back to back, with a six month break following my op in June, after being on the lovely zolly.
In the last two years I have out on 20kg!! An amount that I am shocked about. And it is depressing the hell out of me!! I was last weighed 2 years ago wen I had "recovered" from my anorexia, so they had my weight on file. I had finally got j to the healthy bracket... And now I am way into the overweight category!! If I had been sat there gorging myself for two years I would have understood, but in all honesty I have one of the healthiest diets of everyone I know, I still train and swim and still the weight continues to go up and up. The respite from exercise I had was when I was in physio, teaching myself to walk properly again after some major never damage in surgery, but even during then I still had physio exercises to do three times a day. I have hardly been sedentary. I walk everywhere too.
All in all the docs said that this is happening because of my meds, and there is little that can be done. Except increase my exercise.. Considering I am going to the gym 4 times a week for 2 hours a time... I now have to go more!!
Now not being defeatist... But with Endo my being able to go 4 times a week is a bloody miracle and my body cries out for the rest days as it is... How on earth will I manage 6!!! Lord only knows.
Today however I weighed myself and I have lost 4kg, which I am amazed and surprised about (I haven't started the 6 times a week yet) I am wondering what has caused this dramatic loss... I am hoping that this is the start of things. It's killing me being the size I am, and I want to lose these 20kg if it kills me!!
No one really explains to you the real impact all these meds have on your body, it's not fully detailed out to you at all... If it was, would we want to take anything at all... To be honest, I probably wouldn't take anything!!
Xx
In the last two years I have out on 20kg!! An amount that I am shocked about. And it is depressing the hell out of me!! I was last weighed 2 years ago wen I had "recovered" from my anorexia, so they had my weight on file. I had finally got j to the healthy bracket... And now I am way into the overweight category!! If I had been sat there gorging myself for two years I would have understood, but in all honesty I have one of the healthiest diets of everyone I know, I still train and swim and still the weight continues to go up and up. The respite from exercise I had was when I was in physio, teaching myself to walk properly again after some major never damage in surgery, but even during then I still had physio exercises to do three times a day. I have hardly been sedentary. I walk everywhere too.
All in all the docs said that this is happening because of my meds, and there is little that can be done. Except increase my exercise.. Considering I am going to the gym 4 times a week for 2 hours a time... I now have to go more!!
Now not being defeatist... But with Endo my being able to go 4 times a week is a bloody miracle and my body cries out for the rest days as it is... How on earth will I manage 6!!! Lord only knows.
Today however I weighed myself and I have lost 4kg, which I am amazed and surprised about (I haven't started the 6 times a week yet) I am wondering what has caused this dramatic loss... I am hoping that this is the start of things. It's killing me being the size I am, and I want to lose these 20kg if it kills me!!
No one really explains to you the real impact all these meds have on your body, it's not fully detailed out to you at all... If it was, would we want to take anything at all... To be honest, I probably wouldn't take anything!!
Xx
Thursday, 20 December 2012
Provera... Again...
Well... I don't really know what to write about today. But I wanted to write nonetheless. I am about 6-8 weeks into my new course of Provera... (Again) but on a higher dosage. And my goodness some of the side effects are very apparent already!! My appetite is very up and down at present... Sometimes I don't want to eat at all, then I can eat and eat and never seem to be full... More of a binge eat!! Lol. I don't eat obscene amounts of food, but a large amount for me I guess. Also having a major spurt in the chest department!! And that is something I really didn't need in the slightest!! Lol. Already being an e/f cup... I have now jumped up to a g cup! And still only on a 34 back. So as you can imagine, I am terribly too heavy at the moment. I am hoping I don't increase any further, as I fear that my small stature of 5ft3" will not take anymore, and I will collapse under the weight of my chest!!
One of the other side effects, is an effect on ones sleeping pattern. And this I am definitely noticing. I have suffered terribly with my sleep for years. And whenever there is a med I take that can have an adverse affect on sleep, I am pretty much guaranteed to get it. I don't even read the side effects anymore, until I start to notice things. Like sleep, appetite for example. And then I investigate them. I don't want to put all the side effects in my head and then psychosomatically develop those side effects.
At least the first few weeks are out of the way which are generally the hardest with a new med. once adjusted into my system fully, things should be alright. Fingers crossed!!
Xxx
One of the other side effects, is an effect on ones sleeping pattern. And this I am definitely noticing. I have suffered terribly with my sleep for years. And whenever there is a med I take that can have an adverse affect on sleep, I am pretty much guaranteed to get it. I don't even read the side effects anymore, until I start to notice things. Like sleep, appetite for example. And then I investigate them. I don't want to put all the side effects in my head and then psychosomatically develop those side effects.
At least the first few weeks are out of the way which are generally the hardest with a new med. once adjusted into my system fully, things should be alright. Fingers crossed!!
Xxx
Sunday, 16 December 2012
December issues...
There is definitely something about this time of the year that makes my Endo flare beyond belief. Last year I spent pretty much all December in hospital and having emergency surgery... And this year I'm doing all I can to keep my head above water.
Today has been an awful awful day, had to resort to the usage of oxycodone - which I bring out at times of great need. I have a limited supply and I have to use ten sparingly as the doc will no longer prescribe them to me. S naturally I try everything I can first... Naproxen, gabapentin, tramadol... To name a few. When all else fails out comes the oxy. I hate when things get that bad. I can feel my body gradually wearing down and down, appetite has gone, bowel has flared something chronic. I just wish I knew what was setting it off again.
Last year I had a huge ovarian cyst that had to be removed and they ended up blasting Endo at the same time. I hope it is not another cyst as that made me so very ill indeed. Really do not what to be going through that again at all. Hopefully this is just a blip and things will improve... I keep my fingers crossed.
I am now back on Provera short term before I have my next surgery. Gynae put me on a stronger dosage than I have been on before... Not seeing the benefits as yet. But fingers crossed soon the effects will take. A little respite over the holiday season will be very much appreciated!!
All I want for Xmas is a pain free day!! Lol. Please Santa I have been a very good girl this year.
Until then... I will keep smiling and stay fighting as ever!!
Love to you all.
Xx
Today has been an awful awful day, had to resort to the usage of oxycodone - which I bring out at times of great need. I have a limited supply and I have to use ten sparingly as the doc will no longer prescribe them to me. S naturally I try everything I can first... Naproxen, gabapentin, tramadol... To name a few. When all else fails out comes the oxy. I hate when things get that bad. I can feel my body gradually wearing down and down, appetite has gone, bowel has flared something chronic. I just wish I knew what was setting it off again.
Last year I had a huge ovarian cyst that had to be removed and they ended up blasting Endo at the same time. I hope it is not another cyst as that made me so very ill indeed. Really do not what to be going through that again at all. Hopefully this is just a blip and things will improve... I keep my fingers crossed.
I am now back on Provera short term before I have my next surgery. Gynae put me on a stronger dosage than I have been on before... Not seeing the benefits as yet. But fingers crossed soon the effects will take. A little respite over the holiday season will be very much appreciated!!
All I want for Xmas is a pain free day!! Lol. Please Santa I have been a very good girl this year.
Until then... I will keep smiling and stay fighting as ever!!
Love to you all.
Xx
Monday, 5 November 2012
Gym time is good for you.
This week I am going to try and get back to gym a little bit... I really really miss the gym so much! And I long for a nice swim or a run...
With the problems I am having around my heart, I have to be careful with the cardio things. With a resting pulse at 117 bpm, I am not allowed to over-exert myself until my ECG has Aiken place. But, mild exercise. So walking on the treadmill. Light cycling. Small amount of swimming is ok. I will naturally listen to my body and not push it too much.
Exercise makes me feel so much better about myself. Plus it is good for the pain... It is tough when the pain is so bad you don't want to move at all!! But it does help to keep moving when you can. I am no where near the standard I was once at. But keeping myself fit and healthy is all
I ask for at the moment... So David Lloyd near me have an amazing gym!! All the mod cons and a stunning health suite too. With sauna and steam. So I shall be investing in a membership there.
Can hardly wait!!!
With the problems I am having around my heart, I have to be careful with the cardio things. With a resting pulse at 117 bpm, I am not allowed to over-exert myself until my ECG has Aiken place. But, mild exercise. So walking on the treadmill. Light cycling. Small amount of swimming is ok. I will naturally listen to my body and not push it too much.
Exercise makes me feel so much better about myself. Plus it is good for the pain... It is tough when the pain is so bad you don't want to move at all!! But it does help to keep moving when you can. I am no where near the standard I was once at. But keeping myself fit and healthy is all
I ask for at the moment... So David Lloyd near me have an amazing gym!! All the mod cons and a stunning health suite too. With sauna and steam. So I shall be investing in a membership there.
Can hardly wait!!!
Saturday, 3 November 2012
Give into a little indulgence...
There are those days when I want to just say hang it all... I am going to be self indulgent... and this is one of those days!!
Every now and then, I want to blow off a little steam and simply indulge myself in the things that I should not eat or do... I want to drink a gorgeous bottle of red wine, I want to have rich food and ice cream and I want to dance the night away!! Sometimes, you have to listen to your body... when it is telling you to slow down and when it is telling you to indulge.
Now, I know very well indeed the sorts of things that set my body off, and cause flares, and 90% of the time I am such a good girl and I do everything I am supposed to. But tonight... I am going to eat something really tasty and naughty for dinner. I am going to drink a couple of glasses of red wine. I will leave out the dancing... well maybe around my lounge who knows!! lol.
There are times to be good and there are times to be bad. After all - what is life without a little fun! I now what to expect tomorrow and so will be sure to take all the necessary precautions... But for now... Let the fun begin!!
Xx
Every now and then, I want to blow off a little steam and simply indulge myself in the things that I should not eat or do... I want to drink a gorgeous bottle of red wine, I want to have rich food and ice cream and I want to dance the night away!! Sometimes, you have to listen to your body... when it is telling you to slow down and when it is telling you to indulge.
Now, I know very well indeed the sorts of things that set my body off, and cause flares, and 90% of the time I am such a good girl and I do everything I am supposed to. But tonight... I am going to eat something really tasty and naughty for dinner. I am going to drink a couple of glasses of red wine. I will leave out the dancing... well maybe around my lounge who knows!! lol.
There are times to be good and there are times to be bad. After all - what is life without a little fun! I now what to expect tomorrow and so will be sure to take all the necessary precautions... But for now... Let the fun begin!!
Xx
Friday, 2 November 2012
A waiting game...
I hate to say it and I hate to be really negative... but the NHS sucks right about now!!
6 weeks ago I was meant to see my gynae, and find out the issue with the last surgery - and the next options. So my bowel resection and all the other info I needed. I was also meant to be starting a new form of treatment - which my gynae wanted to wait for 3 months post op before I started it. Allow the lovely zolly to get out of my system completely.
So.. the day comes for my appointment and I am ready and eager... Half an hour before the appointmet - I received a call saying that they had lost my notes and therefore my appointment was cancelled...
That was 6 weeks ago - and still my notes have not been found. They have lost over 10 years of notes. All 6 surgeries, all the doctors, all the medications I have been on and more importantly for me the results and info about June 2012 surgery. I was so upset that day, I could not keep it together. They do not seem to understand the emotional aspect of all of this at all.. It hit me hard..
So, I am still waiting to begin my treatment and still have no idea about my next surgeries or what went wrong last time. I am managing my days of 15 pills... A combination of Gabapentin, Naproxen, Tramadol, Amitriptyline and BuTrans patches. This is far too much for one person it really is an insane amount of medication. My body is crying out for treatment, and for something to be done...
I know I am in the worse stages of Endo, with my digestive system being attacked by it, but I need to see my gynae. I need to understand what it going on and what the plan is... Until my notes are found - I will be at a complete loss!
So I go on, I move forward and I do what I can. I have written to the Patient Liason Service and I contact the hospital every week. They still refuse to see me without finding my notes... I just really hope they are found. I dont know what I will do if they are not found... Lord only knows.
FINGERS CROSSED!!!
XX
6 weeks ago I was meant to see my gynae, and find out the issue with the last surgery - and the next options. So my bowel resection and all the other info I needed. I was also meant to be starting a new form of treatment - which my gynae wanted to wait for 3 months post op before I started it. Allow the lovely zolly to get out of my system completely.
So.. the day comes for my appointment and I am ready and eager... Half an hour before the appointmet - I received a call saying that they had lost my notes and therefore my appointment was cancelled...
That was 6 weeks ago - and still my notes have not been found. They have lost over 10 years of notes. All 6 surgeries, all the doctors, all the medications I have been on and more importantly for me the results and info about June 2012 surgery. I was so upset that day, I could not keep it together. They do not seem to understand the emotional aspect of all of this at all.. It hit me hard..
So, I am still waiting to begin my treatment and still have no idea about my next surgeries or what went wrong last time. I am managing my days of 15 pills... A combination of Gabapentin, Naproxen, Tramadol, Amitriptyline and BuTrans patches. This is far too much for one person it really is an insane amount of medication. My body is crying out for treatment, and for something to be done...
I know I am in the worse stages of Endo, with my digestive system being attacked by it, but I need to see my gynae. I need to understand what it going on and what the plan is... Until my notes are found - I will be at a complete loss!
So I go on, I move forward and I do what I can. I have written to the Patient Liason Service and I contact the hospital every week. They still refuse to see me without finding my notes... I just really hope they are found. I dont know what I will do if they are not found... Lord only knows.
FINGERS CROSSED!!!
XX
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